Our first official piece of 'equipment' , the Squiggles stander, has arrived for our special little lady and boy is it cute! It has pink padding, a mod desk for playing, and the best part is...Lu seems to like it!!!! We don't know if it will indeed improve her ability to bare weight, or improve her bone density, or help with the development of her hips..there are mixed reviews about all of those things. However, one thing for sure is that it gives her a new perspective, a bird's eye view, if you will :) , to see out the window, to look down at her dogs, to stretch her legs, to socialize, and one day to be at the same height as her peers in school! I can't believe I'm mentioning our little Lu in school- so exciting, cute and a bit scary to think about...but that day will come. We do about 2 10-15 minute sessions per day, sometimes shorter, depending on her mood. The stander will grow with her, and has wheels to push her around so this little Lubird can be on the move. Lucia 'needs hightops' to help support her ankles, so we now also have the cutest high top shoes to complete her standing ensemble. We're so proud of you Lubird! Our hope is that she will start to push with her feet, straighten her legs(her knees stay a bit bent now), and one day she may STAND when she is out of the stander! Right now we're just watching her get used to the contraption- she even hits her favorite toys when she's in it- a little computer and her piano. Check out the little lady in action!
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| proud parents-first day |
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| first day-ok, if you need your bottle to be happy we'll give in.. |
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| looking out the window |
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| getting used to my new shoes! |
| Thanks Rebecca for all your help with the Squiggles! Thank you cousin Jim, wife Lara and family for visiting us on your Thirst Relief tour! Thank you God for giving us access to medical equipment like this and for all her therapists to help, guide and cheer Lucia on along the way! |
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