PKS Awareness Day

Today, December 4th, is recognized as International PKS Awareness Day.  Pallister-Killian Syndrome is represented by 4 short arms (a duplication of the normal single pair) of the 12th chromosome.  So, 12/4 was chosen as the date.  So far, about 5 states recognize this day, thanks to efforts by PKS Kids parents.  Someday, hopefully next year,  I can get Colorado and Ohio on board too!
The aim is to bring awareness, education and support to PKS Kids.  Recognizing another rare syndrome, and educating others, will hopefully create support, not just financially but socially too.    There are SOOOOO many rare syndromes, and so many special people, if we can all, including myself, just be more aware and open, then maybe someday it won't be so awkward or even scary to see those that are different.  As Jason once said,  they wouldn't be "special" if they were typical or not rare.  Simple, true, beautiful and bit sad, all at the same time.
I thought this would be a good time to share the video we made for the St. Lucia White Party 2012.  Jason and I made it to do just this- bring awareness, to educate and show those there what they were supporting!  It makes me cry every time-make sure you listen with the music.  If it doesn't pull up it's 'St Lucia White Party 2012 large'  on 'you tube'.