Desats:
Before Lucia had her surgery she had incidents where her oxygen level dropped...a lot- it's called desat or desaturation (under 90 for more than a few seconds).
Bradys:
She has also had a few bradycardia's aka brady's where her heart beats too slow (under 80 for over a few seconds is a brady).
Typically desats and bradys are combined- hers are sometimes and other times not.
Lucia had 3-5 desats in the 30's and several in the 50-70 range since we've been in the hospital along with some bradys (she may have had them all along but we just haven't known). Needless to say they have all been scary for us-the monitor beeps, and beeps and beeps and when the number on the screen does not jump back up the nurses run in and together we would try to arouse Lucia to breath and we'd place an oxygen mask on her little mouth until she was back up again- usually would take 5-25 seconds- seems MUCH longer. She has been on O2 since last Thursday and we were hoping the surgery fixing the reflux would solve the desat/brady issue BUT last night proved it was not so :( ... She had over 5 desats combined with some bradys. The nurses and I were very attentive to Lu and she usually recovered quickly. There is something else going on though that needs to be fixed...
So over the next few days we'll be doing some tests with neurologist/pulminologist and more.. BUT on a fun note- SHE CAN HOPEFULLY EAT TODAY :) yay for breastmilk!
She is also recovering well- sleeping with no fevers or other side effects- Yay again!
more to come and thank you all for posts, emails, texts and more..
xoxo
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2 comments:
Juliet and Jason - We are thinking of you all and praying for you and little Lu. She is absolutely adorable! We spent time in Children's with Trevor hearing those monitors go off and although it doesn't hold a candle to what you are going through, we can relate to the fear and uncertainty you're feeling and our hearts go out to you. Your strength and grace under pressure is incredible and it appears that Lucia chose the perfect parents to love and support her. We are thrilled to hear that the surgery went well. Blessings to all of you. We hope to see you soon. Love, Tim and Taryn Wilson
Little Lucia is so lucky to have "chosen" you two as parents. What amazing models she will have as she grows into the amazing woman she will be. I know she will bring as much joy into your lives as you have into hers already. What an amazing family you three are! I am truly blessed to witness and be a part of your journey.
Brandon
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