Wires Galore!

Lucia had 3 feedings yesterday through her new G-tube or 'button'  soooo happy to give our girl some more delicous and nutritious milk again.  She was a bit irritable from the surgery so we are still giving her some pain meds and  comforting her as much as we can.  To determine the root of the desats and bradycardias she is also getting some more tests.  

Last night an EEG for 13 hours-20 little wires attached to her head with wax and then wrapped up like a beehive.  She had 2 incidents of low numbers so we will know if they were seizure related.

Off with those wires and goop at 9AM and by 9:30 we were off to another floor for a sleep study to see if she has sleep apnea.  Seizures and apnea are very common for pks kids so we want to rule them out or treat either as necessary.  

So as I pump my milk,  little Lu is sleeping soundly with more wires, more headwrapping and is also getting fed through her button!  

We'll update the results as we hear back from our neurologist, amazing Jessica Litwin.  

Thanks for the continuous outpouring of love that we are receiving.  Little Lu feels so special already and is excited to meet each and every one of you some day.