roses are red
lu's eyes are blue
she's our little birdie
and we love you, Cupid Lu!
happy valentines lubird!
Saturday night we had the Hammond family over for dinner. Caroline, West, Christopher age 7 with PKS, and his little sister Carly age 5. Unfortunately, little Christopher has his nights and days mixed up so he mostly slept soundly but we were able to have some quality time with his parents and sister. Little Chris has been through so much, so much...I can't even explain all that boy and his family have endured, but no doubt he is a fighter.
One thing that I keep thinking about since Saturday is something Chris' mom said. Christopher is on a g tube and has a bit of a 'set-up' with his feeds, he is also on oxygen, in a special wheelchair and of course has a special look about him, as special needs kids and people do... Caroline said she doesn't take him out too much because he could get very, very sick if he catches even a little cold and it also makes people uncomfortable. Why is it that other people are uncomfortable? I agree with her and it's true, when there is something 'different' in a typical situation, it can rattle the scene. Special needs people could care less how people feel about them-they are perfectly happy being just who they are. Shouldn't it be the person that is 'different/handicapped/dependent on others for care...' be the one that is uncomfortable? But it's not. Special people might blurt out something different or even inappropriate, or they may look different, and eat different, but who cares, isn't different the spice of life? Handicapped people help bring their special spice of life to every situation in which they are present. They do not judge anyone. They do not brag about their possessions. They do not pretend to be anyone but the pure and innocent person that they are and they do it in their own unique way. Made me sad to think about..they are just angels among us....beautiful little cupids and angels!
We loved spending time with you and your family Christopher, if you are still on your awake night schedule we'll adjust our schedules sometime so we can ALL hang out! And thank you for all the fun gifts!
Happy first valentines day Lu, your daddy and I could not love you more! Lucia wants to send a valentines to some special boys in her life. Giacomo and Shaw (at least they don't live in the same country :O )
Thank you Doug Hastert for your nice donation to PKS Kids, Thank you Stacy Fete, Katie Polce, Becky Hamphill, Jake Wieland and Tannan Morris for your Lucia t-shirt purchases. Thank you neighbors for the great books and highchair. Thank you Tallie and Henry for the valentines. Happy Valentines Day- a Holiday just for Love!!!
AND, I just got off the phone with Lu's cardiologist, Dr. Jane Nydam and she said Lu's heart looks GREAT- we don't have to go back for a YEAR- what a great valentines present-a good heart report!
xoxoxoxoxoxoxoxoxoxoxoo
Jules, Jason, Little Lu, Frieda and Blue
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1 comment:
love your post Jules...really makes you think. I think people are uncomfortable bc they are more afraid than anything. They are afraid they are going to say the wrong thing, do the wrong thing, etc. I believe it is our job to teach people that saying something wrong is better than saying nothing at all. have so much fun in Mexico and get some sun for me :) love you guys!
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