A for Oxygen!

queen Lu with her George Washington headpiece or stroller head support and no O2 tube!

Still so much to say about last week's events and so many to thank but I'm going to keep it short and sweet as it's been a busy week!

Lucia had an 'in home sleep study' Monday and Tuesday night.  She always sleeps hooked up to a pulse-oximeter to measure her oxygen/pulse levels at night but this study involved the medical supply company coming by and setting up a much more complex machine so her levels could be recorded and reviewed by her doctor, her pulminologist, the lovely Margarita.  As she is always on oxygen,  Margarita wanted to be sure it was enough oxygen and how she was doing...the result... an A! Lucia's average was around 95 and that is awesome (should be between 92-100) !  So, feeling good, I took off that little nasal cannula (oxygen tube in her nose) the next day for an hour and she stayed in the 90's (alert and awake levels tend to be better).  So we kept it out another hour, and another and then another, the whole time measuring her oxygen levels and she stayed above 90 the whole darn day! We did the same today, that's right- no tube in that cute button nose for two days in a row! We've always noticed her big blue eyes and cute button nose but without the tube-so free and cute in the Mile Hi thin air city!  She'll be using oxygen at night for a while, we are told, but if we can lose it during the day-here and there- sweet cherry pie!

Some tube-free nose time, Beautiful Benefit, Blessings, Amen!  Onward and Upward!  Our Lu-bird's lungs are getting stronger!  Tweet Tweet-So So Sweet!

Nite Nite

Thank you for all the online Lucia Light T-Shirt purchases this week-
Amy Thompson, Leigh and Lizzie Bobilya, Topaz Roberts,  Colleen O'Donnell, Katie Heaps and Heidi Harding!

Thank you Batcha's for the adorable sock monkey and Gigi and Fisher for the Ghost Pumpkin Surprise!

Love you Lu!