Monday, October 10, 2011

A Giggle and Good News!




When I take little Lu's hands in my hands and pat her little hands on my cheeks she seems to smile and tonight she even busted out a little giggle! A giggle from our girl!  A sweet little giggle! Little Lu let out a little giggle!!  These little milestones are so sweet and special and a blessing, and we'll take them when you are ready to give them out Little Lu!  You can witness it above :)

We sure love Lucia's Pulminologist, Margarita Guarin, especially when she gives us good news!  I shared our excitement about Lu being off oxygen in Ohio and she said, that's good because it means her sleep apnea truly is central.  Central apnea means central nervous system, where obstructed apnea means something is blocking her being able to breath properly.  So....the possibility of a tracheostomy is confirmed to be negative!!  I have always been dreading the next sleep study for fear that they would say it was/is obstructed apnea but No Way Jose! Ah yes, very very very very fabulous to hear that.  She had many nice things to say about Lucia, and she is pleased with what she sees!  Music to our ears!

Thank you Cayla for the oh so fun and so very cute g-button covers!  We absolutely love them- she no longer wears blah medical gauze around that button- she has cute fabric colorful covers-today she is wearing a duck print. www.feedingessentials.com if you have need for a g-button cover!  Tomorrow we are going to share one with a friend who just got a g-button today,  Lexi Skinner.  Thank you Katy Linstroth for your nice card, thank you Aunt Kathy for the beautiful pictures, and thank you Lucy and Lizzie for the Lucia burp cloths!

This week is the countdown for the St. Lucia White Party- we can't wait! A giggle, a good report and a party-this is something very very special.  Thank you God for giving us so much!  xoxo
Lucia's cute new fashonista accessory on her g-button!

5 comments:

Laura said...

Tickle me Elmo can't hold a candle to a giggle from Lu!

I am celebrating the great news tonight with margaritas!

Can't for Saturday! There is so much to celebrate! Love you little lu and parents.

Tonya said...

...can't wait to see the video (its currently locked up on my computer). We are looking forward to Saturday too - it will be super fun and for the most super cause. Love you Lu Bird!!!!

courtney said...

What great great great news!!!!! NO trach. that is just fabulous!! I am sad though I also can't get the video to play!!! I would love to hear that lu giggle! congrats lu on your big news day...hugs!

Anonymous said...

GREAT news about the traech!!!!!!! Wish we were close to celebrate at the White Party - what wonderful friends you have... and what blessings you have bestowed upon them with Lu... xoxoxo - the richters

David said...

Fantastic news with icing on top (giggles!)
Super Lu!!!